And Then They Are Men

January 31st, 2010 2 comments »

I have been experiencing growing pains as of late, the pains of watching my boys grow into men.

Yesterday was another day of many “OMG when did they grow up on me?!?” moments. The first one occurred when Kid2 and I were walking to the store. He was busy talking about something and I was busy taking many mental snapshots of his facial expressions, body movements, freckles, counting the ringlets in his hair when I realized just how tall he has gotten in the last few months. It was at that moment that I realized, “Wow. In just over 1 year I will never have to worry about getting a babysitter again should I need one if I decide to go out for an evening. I will never have to check with Kid1 what his plans are again should I want to spend a few hours away.” I shared this revelation with Kid2 and he was excited. He has been counting down the days to when he can do more adult things. I however, have not.

The other week, Kid1 realized that he is almost 15. He said to me, “Where did the time go? I can’t believe I am almost 15 and Kid2 is almost 11! It seems just like yesterday you brought Kid2 home from the hospital and a few days later I was asking you to put him back in your tummy.” I laughed while part of me quietly wept as I replied, “Don’t even talk to me about where did the time go. I’m the one that has to watch you grow up, let go and allow you to make your own adult decisions. You have no idea how awesome it is to watch you and your brother grow up yet how sad it is at the same time. If only you could stay small forever.” My children find this strange. They think I should be looking forward to freedom. However, I enjoy being a mom. It is one thing I can say I am truly good at. It is the one thing growing up when I would think about possible careers, being a mom was always the first on my list. I commented one night to Kid1 how I do not find being a parent a burden or a bother. His reply was, “I think you are the only parent who thinks that.” This made me think “then maybe those other people should never have been parents in the first place.”

After coming to the realization that it is only 1 more year before not having to worry about childcare (1 year may seem like a long time but when I think where did the past 15 years go, it will be here in the blink of an eye), I spent most of the night observing Kid2 and soaking in everything he was doing. When he had decided it was time for bed, he proceeded to crawl into my bed as he is not feeling well. I asked him, “What are you doing?” He said, “Going to sleep.” I replied, “But you are in my bed.” He countered with, “Your bed is better right now.” Puzzled, I asked, “How is it better?” He answered, “It just is. Goodnight mom. By the way, can you play a few of my favourite songs for me while I fall asleep?” So I asked him what songs he wanted me to play. I put them on and watched as he drifted off to sleep.

I found myself watching him for a very long time and thinking “you haven’t watched him sleep since he was a baby. Why is that?” So I grabbed my camera and took a picture of him sleeping. Something else I haven’t done in years. And that is when more realizations come flooding into my brain.

As I sat and watched him sleep for about 30 minutes, I realized that soon the days will be over where he climbs on top of me while we are cuddling on the couch. It is an odd thing to see as he is now almost as tall as I am. But soon, he will no longer want the comfort of laying down on top of me while we cuddle. Soon he will no longer need me for physical comfort. Kid1 stopped cuddling on the couch with me when he was about 12. He will still hug me in public and tell me he loves me in public, but that is about it.

Soon the nights of him crawling into bed with me when he has had a nightmare will be gone. There are some nights where he is standing at my bedroom door in tears because of a dream he had and frustrated I tell him, “It’s okay love. Climb into bed with me.” But I know that when those nights are no longer here, I am going to miss them. I am going to miss being able to fix the things only a mommy can fix. So from now on, hopefully I do not reply to him with frustration in my half-awake state when he is needing the comfort only I can bring.

Soon the nights of my bed being the better bed when he is sick will be over. Sure I wake up the next morning feeling as if a MAC truck repeatedly ran me over because he is wild in his sleep and I spend most of the night dodging flying limbs however I feel a certain helplessness when my boys are sick. I wish I had a magic wand that can cure them and make them feel better. But even if I do not have a magic wand, at least I can make them feel more comfortable, safe and secure in my magic bed.

Soon I have to let them go and hope that from time to time they miss the comfort only I can bring and come to me seeking it.

One day they are boys and then they are men.

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Ghosts From A World Long Dead

January 28th, 2010 No comments »

Sometimes it all becomes too much. Sometimes the words in my head bubble around with such ferocity, it becomes impossible to catch one, let alone hold it down long enough to try and make sense of it all. Sometimes the world becomes so turbulent, all of my energy is spent trying to defuse one crisis after another. And then at the end of a long day of flying around between one disaster to another, stopping them at the very last nanosecond, it is time to reflect upon the events. That is when I realize the day has become a week which has become a month which has become a moment of realization that I have not stopped flying for quite some time.

So back to the Fortress of Solitude I head. The thought of a long overdue reprieve from the world and its problems brings me comfort. Nestled far away from the noises of a chaotic existence is a place of rest where I can commune with those who have gone before me. A place of quiet reflection. A place to pay homage to those no longer with me, those who have become whispers in the wind but have shaped all that I am today.

It’s been so long since I made the voyage home and purged the clanging in my head caused by an unforgiving and thankless world. I do not know where to begin. I returned to find what was once a quiet and peaceful place is now crumbling with neglect. Filled with the echoes of thoughts thundering throughout the crevasses and cracks caused in a quest not only to help others but also to help myself find my place in a world in which I really do not belong. The secrets have become too much. Instead of looking towards the ghosts of the past to guide me, I found myself looking through them and becoming aware of the cold and hard reality.

Those ghosts of a world long since dead were once a source of protection. They kept my secrets and reflected a time when I thought I had a place. They offered the illusion of belonging in an existence of having to hide much of my identity. The world in which I live outside the Fortress of Solitude would never understand. So I live a double life. A life where people lay upon me the burdens of a world they have broken, hoping that I can fix it. And a life where, even if it is the briefest of moments, I can put on a pair of glasses and live among the people, pretending to be one of them. But even when I am walking among them, I am never really one of them because at any moment, a call for help will cry out and off I fly once more.

To the ground I fall, under the burden and pain of the realization the ghosts are just an illusion. An illusion created in order to not feel so alien. Time away from the fortress that was once the source of my strength and power will become its ultimate destruction. Once it was enough to just help and walk among the people, never walking with them. But something happened in the quest to blend-in in order to hide my true identity. Spending time as one of them, even if it were just for show, has caused envy to start growing and twisting within my psyche. I have found myself longing for the ability to be flawed. I find myself desperately desiring acceptance despite the secrets.

I find myself wanting to tell an imperfect being all that haunts me, risking rejection and destruction. The comfort of the ghosts of the past has transformed into the cold and unfeeling reality that they are there out of construct, not out of choice. Sure there are a couple of people who have become aware of a select few of my secrets. However, the only thing that has knowledge of the whole died many years ago and now rattles around offering pre-engineered words of comfort. I would give up everything to be Batman.

Like me, Batman has his own ghosts from the past. Like me, Batman lives a double life. Most beings do. Like me he pretends to be normal all the while waiting to be called upon. Like me, he has a place where he can hide from a world gone mad, buried deep away from the chaos of it all. Unlike me, he can be battered and bruised. He bleeds. He does not have either my mental strength or my physical strength but he does have something I can never have unless…

When Batman has been batterred and bruised, when Batman is overwhelmed with the noises rattling inside of his brain, he can hide away in his batcave with Alfred to nurse his wounds and listen to his secrets. Alfred knows them all and despite the fact that Batman is an imperfect being, he is still there to care for him. Alfred is there no matter what to tend to his broken mind and body. Batman’s burden is not an easy one but at least he never has to carry it alone in fear of ultimate destruction should someone find them out. Someone already knows. Others may find out but someone already carries them around with him, willing to protect them from the preying eyes of the outside world. I would give it all up. I would allow my Fortress of Solitude to crumble out of existance completely. I would risk bleeding and becoming broken, batterred and bruised if at the end of the day I could escape to my cave. I would gladly risk losing it all if I had the comfort of knowing, that if need be, Alfred will always be there waiting for me and offering me protection.

Maybe I am becoming tired. Maybe I have spent too much time living among the humans and my real vulnerability is starting to show. Maybe I should spend more time away in my Fortress of Solitude and stop dreaming of what it would be like to really be with the people and not just living among them. Maybe I do not want to pretend any longer that I do not have my own burdens to shed. But I fear. I fear that if my secrets were to be known, where I to unload them, then I will truly be an outcast without even the past as a guide. Maybe I should premantenly retire to my Fortress of Solitude with nothing but the ghosts of a world long dead to keep me company. But what I wouldn’t do to have a batcave and Alfred.

Perhaps then the words will stops bubbling.

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How To Talk To Your (Almost) 11 Year Old About Female Masturbation

January 19th, 2010 4 comments »

Honest to Betsy, I never thought in a million years I would ever entitle a blog post this. But somethings just need to be shared.

I am a firm believer in talking to your children openly and honestly about sex, sexuality, drugs and what ever else. If my children ask me a question, I answer it. And I encourage them to ask questions about everything. My children have never stopped the 3 year old “why?” phase because I have never answered them with, “Because I told you so.” Even if I was not in a mood to explain things to them, I would because I believe in education. I believe in explaining to my children why certain rules are in place and how things work. After all, I am trying to raise functional adults and not obedient children.

My children brag to their friends about how they are free to come to me about anything and are not afraid to tell me anything or ask me anything. I may not always like what they have to say or ask but communication and conversations are never not encouraged. Kid2 was telling his friend this just today. So his friend told Kid2 to ask me the following question on his behalf and report back the answer, “How do girls masturbate?”

To say I was shocked may not be the right word, but I was surprised. Both my boys already know all the technical stuff about sex, how sperms fertilize eggs and periods and nocturnal emissions etc etc. They even know about male masturbation. For some reason, I never thought female masturbation would ever come up. Stupid, I know.

So I responded with the following, “I am not going to answer that question for your friend. That is a conversation he needs to be having with his parents.” So Kid2 returned fire with, “Well then I want to know.” Shit! My plan to deflect the question failed! I responded with, “I am not prepared to answer this question at this time.” It was a very similar response to when he asked me at 6, “How do the babies get from the dad’s testicles into the mom’s vagina?”  I told him then to give me a day to think about how to answer him and ask me again tomorrow.

Well Kid2 started to think. He came up to me and said, “Well if a guy masturbates by rubbing his penis, does a girl masturbate by rubbing the lips of her vagina?” My brain assploded with the question! Obviously he was not going to let this drop, not even overnight. So I began to feverishly think of how to answer the all important question of  ”exactly how do girls masturbate?” I replied, “Well not really hun. There are more parts to the vagina than just the lips, but you are getting close.” He gave me a boggled look and you could see he was thinking even harder trying to answer this mystifying equation. He said, “I don’t get it mom. It’s not like a guy where the parts hang out in front and are easy to grab and rub.”

GAH FUCK! Okay breathe. Seriously folks, this will happen to you. And if you want your children to have the real facts of life, you need to know how to answer these questions so that your kids are comfortable about sex and sexuality and will come to you for their sex education and not their friends or the streets. Cause we all know if you stand up immediately after sex, you can’t get pregnant and if you do it doggy style you will have a boy.

So I tweeted my little HOLY FUCK moment of the day and began to seriously think how do you answer this question when it is really only one of the few things your child does not know. So this is how I did it. I grabbed a book I have on male sexual health. It really is a good little book. (A Lifetime of Sex: The Ultimate Manual On Sex, Women, And Relationships For Every Stage Of A Man’s Life if you want to look it up). It has nicely labelled drawings/pictures of anatomy as well. Then I called kid2 to the couch where the following conversation took place.

Me: Tell me, how do people have sex?

Kid2: (gives some stupid vulgar answer thinking I am one of his friends and he is being cool and stuff.)

Me: If you want me to give you answers, you need to answer me properly. We use the proper terms in this house.

Kid2: Well normally before hand there is kissing and the undressing of clothes. And then the guy puts his penis in the girls vagina and you know… then after awhile the sperm will come out when he orgasms and if they are not smart and are not using birth control, she can get pregnant if she is ovulating and the egg is in the fallopian tube.

Me: Okay you’ve already told me you think this feels good for the guy. But do you think the penis going in and out of the vagina feels good for the girl?

Kid2: Well I guess so.

Me: Okay we will assume that it does. So if a guy rubs his penis to masturbate since that is kinda replicating it going in and out of a vagina, how do you think the girl does it?

Kid2: OMG! Does she stick her finger in her vagina?

Me: Yes she does. But there are other parts that cause pleasure as well. (Brings out diagram of vagina with labelled parts) As you know, you have a head on your penis. Well girls have something kinda similar made with the same type of tissue. It is called the clitoris. Rubbing that and playing with that is another way a girl can masturbate.

Kid2: Wow. Who knew masturbating for a girl was so complicated.

Me: Are you satisfied with the answer? Do you have any other questions?

Kid2: Nope. That was interesting.

And that is how to talk to your (almost) 11 year old about female masturbation.

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As The Curtain Draws To A Close

December 18th, 2009 1 comment »

I have said before sometimes thank you is not enough. But I am going to try my best to express the flood of thoughts that is going through me at the moment as I prepare for my final Geeky Pleasures radio show tonight.

I was going to do on air thank you however I have been prone to spontaneous eye leakage all day today and I am afraid it will happen tonight while people not only listen, but worse, they watch.

Thank you to everyone who has supported me for the past year and half while I did my thing at Party 934 | 102.5 FM Hudson Valley NY.

Thank you to everyone who not only allowed me to entertain myself but allowed me to entertain you in the process.

Thank you to everyone who has embraced (as one listener put it) my unique brand of geekiness.

Thank you to everyone who laughed at me while I laughed at myself.

Thank you to everyone who supported and allowed me to feel normal at least one day of the week, as normal as a geek/nerd can feel. This is a big one. My radio shows allowed me to have a few hours a week where I could pretend I was doing something productive and meaningful, and I was not living with Lupus (except for the one time I almost fainted during my show). From the bottom of my heart, you will have no idea how much this means to me.

Thank you to all the people behind the scenes who have laughed with me and cried with me while I went through the roller coaster that is my life. Thank you especially to those who just listened. Those that didn’t try to fix it. Those that didn’t try to compare battle wounds. But those who really just listened and allowed me to feel what I was feeling and let it pass when I was ready to let it pass and not when they wanted it to pass. If it were not for your support, I don’t think I would have been able to maintain my normal level of insanity. It would have spiraled into something not as fun.

I hope that sometime (sooner rather than later) I can find a way to make Geeky Pleasures live again in some audio format where we can all come together and geek out in real time with the world. Being able to geek out with people from all over the world in one place and allow the world to listen in is a truly unique and special thing. You are what made it happen. Without your input, without your contributions, without your own unique brand of geekiness it just would not have been as awesome as it was.

Thank you.

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So Long, Farwell

December 17th, 2009 No comments »

Apparently I need to blog about this again as some people seem to have missed the memo. And you know, I think that angers me just a little bit.  Consider this my two week notice to the internet.

Two month ago and without warning due to a lack of funding, I lost a contract that made it possible for me to be online, made this blog possible, made my Geeky Pleasures website possible and made my Geeky Pleasures radio show possible. I am an independent contractor and every single dollar I earn is the difference between keeping a roof over my family’s head and food on the table, and being homeless. The contract was not a huge amount by most people’s standards but it is a devastating amount to my family and me. It is what paid for me to do everything else that you see me do. Because even at the radio station, I am an independent contractor and I did that as a labour of love and not because it made me money. The joys of helping start up a new business venture is that you do not always get paid for the work you do even if it is a legit media outlet.

I would have been offline two month ago if I had not borrowed money (which I still feel sick over as I have never been in debt until now) 1 small design project and a donation that helped pay my bills for this month. And let me tell you, I have hated every moment I have put into all of this ever since. I use to do all of this only for my own amusement. Then people told me that I can’t go offline and they love what I do and it can’t go away etc., etc., etc. Well harm fuzzies does not feed my kids, pay my bills, put a roof over our heads or presents under the Christmas tree. My children do not get to have that part of Christmas this year. If it were not for living in wonderful socialist Canada and the help of a couple of friends and food banks, I would have no food in my cupboards at the moment. If it were not for the fact that I qualify for disability and Canada at least has some decent socialist safety nets, I would be homeless come January 1. I think it would be fair to say that I am resentful at the moment. Not so much at the support and kind words, but at the fact as a result I have become an unpaid, debt laden, dancing monkey.

I even gave people options as to how they could help out if they felt so inclined, if they indeed did really care, and I got nothing but more warm fuzzy words that at the end of the day don’t fix the situation even if they are appreciated.

This past weekend I was able to escape for a few days thanks to a really close friend who decided I needed a change of scenery and I needed to be surrounded by people who really care. He kidnapped me for the weekend and thanks to a visit with another friend, I was able to gain a better perspective on the situation. I told her of something I was doing for someone and she asked, “Are they paying you?” “No”, I replied. Then we got to talking about how people expect me to do all this stuff for them for absolutely nothing. And since we do not live in Gene Roddenberry’s future, I am the one that is getting seriously buggered as a result. Honestly, would you do what I am doing for nothing? Somehow I really doubt it yet you all expect me to do it for nothing and then when I say it is going away, you feel you are entitled to get upset over it. Well you aren’t willing to pay for it so I am no longer willing to provide a service for nothing.

My Geeky Pleasures website hosting is paid up for a couple more month. There is a possibility that I can use my landlord’s internet connection to at least maintain that from time to time. But as for the rest of it, it just is not going to happen as I will have no phone, internet or cable come Jan 1. I am not going to put 40+ hours of my week into what I do with no return except for warm fuzzy feelings from the masses and have my family continue to go without as a result. Maybe sometime in the future the rest of it will be revived but until someone is willing to pay for it to happen, my answer will continue to be “it ends here.” I refuse to be a dancing monkey any longer and have people take advantage of the services I provide.

Happy holidays and have a good 2010.

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The Case Of The Missing Money

November 23rd, 2009 No comments »

Earlier last week, Kid2 came home and informed me he made a bet for $20 with a kid at school and lost. Knowing that I would not pay off his debt, he told me that he had gotten a job at a neighbour’s house doing yard work to pay of this debt. To say I was proud was an understatement.

He was suppose to go to the neighbour’s house on Thursday at 4pm to do the first hour of his work. Thursday came and we realized it was 4:15. All of a sudden he got really upset and tears came to his eyes because he realized he was late. I told him to breathe and to quickly go and let the neighbour know that I had kept him because I needed his help with something and if there is an issue, they can give me a call. I found it slightly odd how much him being late was affecting him emotionally but just chalked it up to Kid2 being a man of his word and feeling sick that he felt as if he broke a promise. I would find out later there was more to this story. A lot more.

Yesterday I was outside when one of the neighbouring children came over and said to me, “Kid2 stole $20 from me and he refuses to give it back.” I shook my head and said, “No he didn’t. He lost a bet to you at school and he is going to pay you once he makes the money.” This is when the other child said, “I don’t even go to the same school as Kid2. He didn’t make a bet with me. When he was over at my house last, he stole $20 from a bag of loonies and toonies I had on the table.”

My brain asploded. I could not believe what I was hearing. I was angry. I thought I had raised better children than that. I told the child that I would be sure to talk to Kid2 about it when he got home from his friend’s house and it would be dealt with. The child said he would be back in an hour to find out of Kid2 was home yet.

About 30 minutes later someone was ringing my doorbell. It was the child again informing me that he found Kid2 and had confronted him about it and told Kid2 that he had told me about the stolen money. He then told me that Kid2 said he didn’t care that I was told and ran off with another child. To say I was angry and disappointed was an understatement. I yet again reassured the child that this would in fact be dealt with when my criminal child returned home. I was not impressed.

I was racking my brains out about how to best approach this with Kid2. I am not a yeller. I feel awful when I raise my voice even so my boys have said to me on numerous occasions, “I wish you would just yell at us. It would make us feel better and it is much nicer than your ‘dark voice’.” (When I am angry, instead of yelling my voice deepens. This voice especially bothers Kid2 and it makes him cry because it doesn’t sound like me at all.) I was so disappointed in this choice he made and my brain still could not understand why on earth he would do something like that. It was so out of character.

Hours pass and he is still not home. I am thinking he is probably afraid to come home because he knows he was caught in a lie. We have this rule, “if you tell me you did something wrong, the consequence will be less severe than if I have to find out through a third party.” Because of this, my children tell on themselves all the time. I have taught them it is important to take ownership of all their choices, both the good and the bad. Life is much easier that way even so it is a hard thing to do at times.

More hours pass and then next thing I know there is the child who narked on Kid2 with his mother and Kid2 showing up on my doorstep. It was all I could do to remain calm. Self went, “Shit! This is not going to be good. Why couldn’t Kid2 have just come home earlier so we could have talked to him in private about it before you dragged him over to the house to apologize for what he did.” I shot Kid2 “the look” and he hung his head in shame because he knew I was disappointed in this event. However, what was about to occur was pretty damn awesome.

The other mother told me that she has hired Kid2 to work on her farm and that she had never met such a hard worker in her life. I was thinking “Did I just enter the Twilight Zone? My kid stole from your kid and you are giving him compliments?!?!” She then went on to tell me that she was planning to come to my house at some other time to have a talk with me in private but unfortunately her kid has a big mouth and this talk is having to come sooner. Again, I did an internal head shake and thought, “Huh? Your kid did the right thing by telling me!” but instead I just continued to listen while in shock. She told me how she felt somewhat responsible for what had happened. She leaves a lot of money laying around the house and it can be a very tempting thing to a 10 year old. Kid2 did take the money, however he had returned the next day and confessed. He owned up to what he did and then asked her if there was any way he would make up for the money that he stole because he felt awful. They didn’t even know the money was missing until he confessed to it and it could have been a lot worse as there was close to $200 laying around that day. And then the mother continued, “Your son is more of a man than any other man that I know. I do not know anybody that would come to my house out of his own free will, knock on my door and tell me he stole from me and ask if there was any way he could work of his debt.”

I was amazed. Kid2 was probably scared shitless because most adults wouldn’t see how much courage it takes to owning up to something like that and would probably shit down his throat and tell him how awful he is, when really he isn’t awful. He just made a really bad choice. She then asked my permission to hire on Kid2 and have him work as much as possible during our rainy season and then full time during the summer to help her out at the farm market. I of course said yes because I could see how important this was to Kid2. He had just finished telling me the other day how he is looking forward to working and how he has learned from his father and I that working can be fun and is a good thing. It shouldn’t be seen as a chore but can be very fulfilling. He was also very jealous of Kid1 when he got his first job over the summer and wished that he was allowed to work as well.

Breathing a sigh of relief, the mother and I discussed the terms of his work contract and she again said that Kid2 told her that he will probably be in a lot of trouble with me. Not so much for stealing but for lying about the events that led up to this meeting. She then repeated that Kid2 is indeed a big man for doing what he has done and hopefully I won’t be too hard on him because I have done a good job raising such a man and she is honoured to know him and have him work for her. She has never seen such a hard worker and even when his friends came by to try and drag him away from work, he continued to work at a good steady pace and didn’t allow himself to be distracted by his friends. He is a wonderful man with a wonderful work ethic who is also very smart and will go on to do great things.

I smiled and thanked her. When she left Kid2 and I talked. I told him before this happened, he was in a lot of trouble. He was going to be grounded for a very long time. I told him I was still disappointed and said, “I am not disappointed with you, I am disappointed in the choice you made.” He said, “I know mom. I tell my friends all the time that you never get upset with me but you do not always like the choices I make. That you love me and are always proud of me even when I do stupid things.” I was satisfied with this.

I felt no further punishment was needed. He was the biggest man ever and did the right thing without my having to tell him how he was going to deal with this situation and fix it. Just like Kid1, I think he will grow up to be one fine human being.

Did I say I am very proud of him?

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Because Sometimes Thank You Is Not Enough

November 14th, 2009 1 comment »

I have had a lot to deal with the past few weeks, both professionally and personally. It has been a very emotional period for me to say the least. My blog postings have been very reflective of that. Some people understand why I sometimes get overly personal and some may not. If if you are the one of the ones that may not, I think the best way I can explain this is people get scared. And those of us who live with Lupus live with a lot of fear. I want to allow people to know that it is okay and they are not alone, even at times when they feel they are alone, as I do often. Most of my feelings of being alone are self-inflicted for reasons I have explained before. I think the emotional battles one goes through living with Lupus are much harder than the physical ones. At least this has been my experience living with this disease.

And on top of those day to day battles (which get worse this time of year) I may lose the one of the major things (aside from my children) that keep me battling and going. And that is my Geeky Pleasures website and radio show. I have been so tempted the last few weeks to just write the “Goodbye it was a pleasure post, maybe we will see each other again sometime in the future” and have my site, blog, Twitter, Facebook go silent now instead of at the end of the month when it is time for the bills to get paid and there is no paying them. Then one of my friends who are on the inside of all of this will kick me in the ass and I decide to prolong it. I lose faith in myself and I begin to think none of it really matters to anyone. And even so one of the primary motivations for me doing what I do is so that I can at least pretend the elephant is not in the room and because I love it with all I am, I want to leave a legacy that was left to me by my grandma and dance teacher. As I have written before, they had chronic illness as well. Lupus took my dance teacher a couple weeks after my road to diagnosis had begun. And if it wasn’t for her, I would have never been diagnosed. My grandma was on oxygen most of my life. Both of these women did amazing things with their lives and to help others despite their challenges and obstacles. They are my heroes and I have lived my life hoping that I could pass on their message to others and give them hope, even if it is just one person. If I manage to do this, then my life meant something. Living with Lupus meant something.

And then shit happens like it has been happening over the past few weeks. Yes there have been many amazing things going on as well that cause me to stop and say, “Wow, I cannot believe this is my life!” But sometimes the shit gets so heavy it is hard to see and appreciate the good. I feel as if I have failed on what it is I hoped to accomplish. That I need to accomplish in order to keep some form of sanity and dignity. Yes my friends tell me they appreciate me and it is so appreciated and cool but that is what friends do. They love and support each other through the dark times so that they can celebrate the good together.

And then something small happens that brings me to tear. I am completely overwhelmed at the moment and cannot stop crying. I was checking my stats for my Geeky Pleasures website and I found this post that has linked to my site. Just when I am about to give up on humanity, somebody will do something small that brings me to tears and everything is fresh again. My purpose has been served and if everything ends at the end of the month, at least I know all of this was not in vain.

I want to say thank you, but sometimes thank you is not enough.

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Because Bills Just Don’t Go Away

November 12th, 2009 No comments »

*sigh* Something I have been doing a lot of lately. I am not going to enjoy writing this post and I honestly wish I didn’t have to. Friends of mine have been pushing me for weeks to write it and I keep saying no but now I really do not have a choice.

I don’t know if people realize this or not but I am self-employed which is a huge YAY. I do not have to get dressed to go to work, I have complete creative freedom over what I do, and when I am going through a Lupus flare, I do not have to worry about losing a job because of my health. Being an independent contractor has a lot of bonuses for me. Especially during seasons such as these ones where my doctor has once again decided that I need to be in reverse quarantine and am not allowed to mingle with the general population in order for me to remain somewhat healthy.

This also comes at a huge drawback. If I lose even one contract, then I am completely screwed financially. And this is what happened a month ago and with no warning. It is a temporary loss due to funding restrictions and the contract will become active again sometime in the future, I just have no idea when. This has hurt my pocket book immensely. And I do not have the luxury to find a temporary “real” job outside of the house because of the severity of my Lupus. So this leaves me in a quandary. And because I really suck at pimping myself out, self-promoting and refuse to use “connections” like many have suggested to me, this leaves me with even less options that I feel comfortable with. Even so it bites me in the ass from time to time, I am not the type of person to do things I am not comfortable with, well that is until now. *sigh*

I have been working so hard on so many different projects lately and most of them are finally starting to pay off in one way or another. I wrote last month that I may be going away again but thanks to a generous offer from a friend, I was given a months reprieve. I was hoping in that time I would finally hear back from some potential sponsors of my Geeky Pleasures site and all would be good. Despite numerous emails asking for an update, I still have not heard back from the one I am most excited about and another one said not at this time but we will keep you in mind for the near future. Well shit that doesn’t really help.

Many friends have been telling me I should put a donate through Paypal button on my site. My reaction has been “I am not comfortable with that and I would feel guilty.” They come back at me with some variation of “But Geeky Pleasures needs to stay around. It can’t disappear. It just can’t.” Even so their sentiment is appreciated, I still get taken a back every time someone messages me or emails me telling me how much they appreciate and enjoy both my website and my radio show.

So because bills just don’t go away and I have two children to feed, I have given in. I have become affiliates with a few companies. This means that my Geeky Pleasures site (which I was hoping to keep ad free) is no longer ad free. From time to time I will posting deals from said companies because in return for placing their ads on my site, I get a commission from any sales. One of these companies is Tiger Direct. Also my affiliates page will be updated as more affiliates are added. Once a week, I will be posting their weekly deals and any other promotions that they send me. The two major drawbacks to this are: I worry I may lose readers over this and I do not get paid immediately for said sales. However, if you are looking to make a purchase for say hardware or software for you computer, games or other such things, I would greatly appreciate you check out my website and go through my affiliates if you are so inclined.

My book is also available for purchase. I posted that news on my Geeky Pleasures site but did not do so here. People have been purchasing it or they tell me they plan on doing so soon. This is awesome and I so appreciate it especially since partial proceeds will be donated to the B.C. Lupus Society where the money will be earmarked for Lupus research and treatment. However, just like the affiliates, I do not get paid for those sales immediately either. There is a hold back. And when I decided to finally finish this book, I never intended to make money from it. The purpose was to raise awareness, fundraising, to get a message out and to leave something for my children. If my only reason for it was to make money, I would have gone through a publisher like I was offered. However, I refused their offer because of the reasons mentioned and self-published which may have been a mistake as people are still leery of self-published books. If you are one of those who have already bought my book or plan to soon, my deepest thanks.

And now finally, I am now accepting donations on my Geeky Pleasures site. This decision was the hardest for me to make. However after strong urging from a few individuals and the need for an immediate solution, I am very reluctantly doing so. If I do not find an immediate solution, Geeky Pleasures will be pulled at the end of the month. And I personally feel this would be a shame. The biggest reasons why I think this would be a shame is because of the platform I am able to give independent artists and musicians. Believe it or not, it has nothing to do with me. Also, it has given a platform for other contributors to get their geek on and readers a little hub for many things geek related. I have had many inquiries lately from people asking me if they could contribute on my site and I really want to be able to give them that. I find it awesome people want to take part in it and that it is starting to become a little community. Without any real promotion or advertising of that site, I have had more page views in the first 3 months than Fark had in its first year. I personally feel this to be a huge accomplishment. When Fark started a decade ago, there was little competition. However in today’s world that is not the case. My site is but one in millions upon millions and the fact it is doing so well blows my mind on a daily basis. The feedback I get on a daily basis blows my mind. Every time someone contacts me for an interview through my site instead of through the station or wanting to contribute or just tells me how much they enjoy it and are happy that I am doing what I do, I honestly get a little teary and think “Wow, I cannot believe this is my life!” I just hope coming to this decision does not have the opposite affect and that I do not alienate my wonderful readers. That would really suck. But because bills just don’t go away and I need to fix this until a better, more permanent solution presents itself, it is time for me to “swallow my pride” as one reader put it to me and just do it.

I really hope you understand and thank you for your understanding if you do.

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You Have To Hold On To These Until I Free My Shadow Lord From His Icey Prison

November 10th, 2009 No comments »

My children constantly amuse me if you have not already figured out by my stories and tweets.

Here is a brief story in the latest saga of my children.

Kid 2 just walked into my office, stuck Bionicle swords on my desk and declared, “You have to hold to these until I free my Shadow Lord from his icey prison!”

I looked at him bewildered and amused as I often do and asked, “Did you just stick your Bionicle in the big cup of water you are currently freezing?”

He smiled his mischievous smiled and responded, “Yes I did. Now lock these away in your desk so that the Shadow Lord cannot acquire them and free himself before his time.” He followed this with a mad scientist cackle.

Before I could even react, he grabbed my desk keys, locked up the swords in one of my drawers, handed me the keys and said, “You better hide these. The fate of the planet depends on it.”

Kid2 then exited stage left.

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Ignore My Ramblings

November 7th, 2009 1 comment »

Ugh. If I am telling you to ignore my ramblings then why am I posting this? Because I just need to vent and get shit out from time to time.

Last night at the end of one of my shows I almost fainted. What makes this worse is people were watching and it scared the shit out of them. I try my best to hide the daily fight I go through with my Lupus. And then stupid shit like almost fainting happens in front of people and I want to crawl into a hole. It is really difficult for me to be vulnerable and nothing is more vulnerable than people witnessing the elephant in the room trampling over you.

I feel like a tool.

My blood pressure likes to do fucked up things to my body often. Normally this passes quickly. Not this time. It has been almost 24 hours since this latest episode and I still feel weak and disorientated. I slept for close to 12 hours thinking maybe I am just overly fatigued because I have not been taking good care of myself lately and not getting at least the 9 hours of sleep that is necessary for me to stay healthy (as far as one can be healthy when they have Lupus). No dice, I still feel like crap and can barely function.

I feel like a tool.

I am such a stupid sucky baby too at the moment. I HATE this and I hate myself for not being stronger. I like to pretend that I do not need anybody. And then episodes like this happen and I long for nothing more than to have someone to cuddle with, to hold me, to stroke my hair and help out with the kids while I either sleep or just rest. It is when I am having an acute Lupus setback that I miss being in a relationship the most. It is rare that I think about relationships because more often than not I feel smothered in them. Today, I long to be smothered and babied and pampered and made to feel as if I mattered.

I feel weak and stupid and I suck. I am crying over nothing. It isn’t even taking a drop of a hat, just taking a breath and I am crying. Yes, I know I shouldn’t be so hard on myself but that is so much easier said than done. I can admit to my failings without any angst except when it comes to the psychological crap and torture I put myself through when Lupus decides it is going to attack me furiously and without warning. It is difficult to admit that I get really really scared and feel so alone. This leads to distancing myself from others and feeling even more alone. But if I show my fear and how alone I feel then others get scared as well. I do not want others to be afraid. It is not fair to them that they have to put up with this shit. Or worse, people feel sorry for me and pity me. I hate that, really HATE that.

I hope this passes quickly so I can go back to pretending I am a rock.

I am such a tool.

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