As The Curtain Draws To A Close

December 18th, 2009 1 comment »

I have said before sometimes thank you is not enough. But I am going to try my best to express the flood of thoughts that is going through me at the moment as I prepare for my final Geeky Pleasures radio show tonight.

I was going to do on air thank you however I have been prone to spontaneous eye leakage all day today and I am afraid it will happen tonight while people not only listen, but worse, they watch.

Thank you to everyone who has supported me for the past year and half while I did my thing at Party 934 | 102.5 FM Hudson Valley NY.

Thank you to everyone who not only allowed me to entertain myself but allowed me to entertain you in the process.

Thank you to everyone who has embraced (as one listener put it) my unique brand of geekiness.

Thank you to everyone who laughed at me while I laughed at myself.

Thank you to everyone who supported and allowed me to feel normal at least one day of the week, as normal as a geek/nerd can feel. This is a big one. My radio shows allowed me to have a few hours a week where I could pretend I was doing something productive and meaningful, and I was not living with Lupus (except for the one time I almost fainted during my show). From the bottom of my heart, you will have no idea how much this means to me.

Thank you to all the people behind the scenes who have laughed with me and cried with me while I went through the roller coaster that is my life. Thank you especially to those who just listened. Those that didn’t try to fix it. Those that didn’t try to compare battle wounds. But those who really just listened and allowed me to feel what I was feeling and let it pass when I was ready to let it pass and not when they wanted it to pass. If it were not for your support, I don’t think I would have been able to maintain my normal level of insanity. It would have spiraled into something not as fun.

I hope that sometime (sooner rather than later) I can find a way to make Geeky Pleasures live again in some audio format where we can all come together and geek out in real time with the world. Being able to geek out with people from all over the world in one place and allow the world to listen in is a truly unique and special thing. You are what made it happen. Without your input, without your contributions, without your own unique brand of geekiness it just would not have been as awesome as it was.

Thank you.

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So Long, Farwell

December 17th, 2009 No comments »

Apparently I need to blog about this again as some people seem to have missed the memo. And you know, I think that angers me just a little bit.  Consider this my two week notice to the internet.

Two month ago and without warning due to a lack of funding, I lost a contract that made it possible for me to be online, made this blog possible, made my Geeky Pleasures website possible and made my Geeky Pleasures radio show possible. I am an independent contractor and every single dollar I earn is the difference between keeping a roof over my family’s head and food on the table, and being homeless. The contract was not a huge amount by most people’s standards but it is a devastating amount to my family and me. It is what paid for me to do everything else that you see me do. Because even at the radio station, I am an independent contractor and I did that as a labour of love and not because it made me money. The joys of helping start up a new business venture is that you do not always get paid for the work you do even if it is a legit media outlet.

I would have been offline two month ago if I had not borrowed money (which I still feel sick over as I have never been in debt until now) 1 small design project and a donation that helped pay my bills for this month. And let me tell you, I have hated every moment I have put into all of this ever since. I use to do all of this only for my own amusement. Then people told me that I can’t go offline and they love what I do and it can’t go away etc., etc., etc. Well harm fuzzies does not feed my kids, pay my bills, put a roof over our heads or presents under the Christmas tree. My children do not get to have that part of Christmas this year. If it were not for living in wonderful socialist Canada and the help of a couple of friends and food banks, I would have no food in my cupboards at the moment. If it were not for the fact that I qualify for disability and Canada at least has some decent socialist safety nets, I would be homeless come January 1. I think it would be fair to say that I am resentful at the moment. Not so much at the support and kind words, but at the fact as a result I have become an unpaid, debt laden, dancing monkey.

I even gave people options as to how they could help out if they felt so inclined, if they indeed did really care, and I got nothing but more warm fuzzy words that at the end of the day don’t fix the situation even if they are appreciated.

This past weekend I was able to escape for a few days thanks to a really close friend who decided I needed a change of scenery and I needed to be surrounded by people who really care. He kidnapped me for the weekend and thanks to a visit with another friend, I was able to gain a better perspective on the situation. I told her of something I was doing for someone and she asked, “Are they paying you?” “No”, I replied. Then we got to talking about how people expect me to do all this stuff for them for absolutely nothing. And since we do not live in Gene Roddenberry’s future, I am the one that is getting seriously buggered as a result. Honestly, would you do what I am doing for nothing? Somehow I really doubt it yet you all expect me to do it for nothing and then when I say it is going away, you feel you are entitled to get upset over it. Well you aren’t willing to pay for it so I am no longer willing to provide a service for nothing.

My Geeky Pleasures website hosting is paid up for a couple more month. There is a possibility that I can use my landlord’s internet connection to at least maintain that from time to time. But as for the rest of it, it just is not going to happen as I will have no phone, internet or cable come Jan 1. I am not going to put 40+ hours of my week into what I do with no return except for warm fuzzy feelings from the masses and have my family continue to go without as a result. Maybe sometime in the future the rest of it will be revived but until someone is willing to pay for it to happen, my answer will continue to be “it ends here.” I refuse to be a dancing monkey any longer and have people take advantage of the services I provide.

Happy holidays and have a good 2010.

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The Case Of The Missing Money

November 23rd, 2009 No comments »

Earlier last week, Kid2 came home and informed me he made a bet for $20 with a kid at school and lost. Knowing that I would not pay off his debt, he told me that he had gotten a job at a neighbour’s house doing yard work to pay of this debt. To say I was proud was an understatement.

He was suppose to go to the neighbour’s house on Thursday at 4pm to do the first hour of his work. Thursday came and we realized it was 4:15. All of a sudden he got really upset and tears came to his eyes because he realized he was late. I told him to breathe and to quickly go and let the neighbour know that I had kept him because I needed his help with something and if there is an issue, they can give me a call. I found it slightly odd how much him being late was affecting him emotionally but just chalked it up to Kid2 being a man of his word and feeling sick that he felt as if he broke a promise. I would find out later there was more to this story. A lot more.

Yesterday I was outside when one of the neighbouring children came over and said to me, “Kid2 stole $20 from me and he refuses to give it back.” I shook my head and said, “No he didn’t. He lost a bet to you at school and he is going to pay you once he makes the money.” This is when the other child said, “I don’t even go to the same school as Kid2. He didn’t make a bet with me. When he was over at my house last, he stole $20 from a bag of loonies and toonies I had on the table.”

My brain asploded. I could not believe what I was hearing. I was angry. I thought I had raised better children than that. I told the child that I would be sure to talk to Kid2 about it when he got home from his friend’s house and it would be dealt with. The child said he would be back in an hour to find out of Kid2 was home yet.

About 30 minutes later someone was ringing my doorbell. It was the child again informing me that he found Kid2 and had confronted him about it and told Kid2 that he had told me about the stolen money. He then told me that Kid2 said he didn’t care that I was told and ran off with another child. To say I was angry and disappointed was an understatement. I yet again reassured the child that this would in fact be dealt with when my criminal child returned home. I was not impressed.

I was racking my brains out about how to best approach this with Kid2. I am not a yeller. I feel awful when I raise my voice even so my boys have said to me on numerous occasions, “I wish you would just yell at us. It would make us feel better and it is much nicer than your ‘dark voice’.” (When I am angry, instead of yelling my voice deepens. This voice especially bothers Kid2 and it makes him cry because it doesn’t sound like me at all.) I was so disappointed in this choice he made and my brain still could not understand why on earth he would do something like that. It was so out of character.

Hours pass and he is still not home. I am thinking he is probably afraid to come home because he knows he was caught in a lie. We have this rule, “if you tell me you did something wrong, the consequence will be less severe than if I have to find out through a third party.” Because of this, my children tell on themselves all the time. I have taught them it is important to take ownership of all their choices, both the good and the bad. Life is much easier that way even so it is a hard thing to do at times.

More hours pass and then next thing I know there is the child who narked on Kid2 with his mother and Kid2 showing up on my doorstep. It was all I could do to remain calm. Self went, “Shit! This is not going to be good. Why couldn’t Kid2 have just come home earlier so we could have talked to him in private about it before you dragged him over to the house to apologize for what he did.” I shot Kid2 “the look” and he hung his head in shame because he knew I was disappointed in this event. However, what was about to occur was pretty damn awesome.

The other mother told me that she has hired Kid2 to work on her farm and that she had never met such a hard worker in her life. I was thinking “Did I just enter the Twilight Zone? My kid stole from your kid and you are giving him compliments?!?!” She then went on to tell me that she was planning to come to my house at some other time to have a talk with me in private but unfortunately her kid has a big mouth and this talk is having to come sooner. Again, I did an internal head shake and thought, “Huh? Your kid did the right thing by telling me!” but instead I just continued to listen while in shock. She told me how she felt somewhat responsible for what had happened. She leaves a lot of money laying around the house and it can be a very tempting thing to a 10 year old. Kid2 did take the money, however he had returned the next day and confessed. He owned up to what he did and then asked her if there was any way he would make up for the money that he stole because he felt awful. They didn’t even know the money was missing until he confessed to it and it could have been a lot worse as there was close to $200 laying around that day. And then the mother continued, “Your son is more of a man than any other man that I know. I do not know anybody that would come to my house out of his own free will, knock on my door and tell me he stole from me and ask if there was any way he could work of his debt.”

I was amazed. Kid2 was probably scared shitless because most adults wouldn’t see how much courage it takes to owning up to something like that and would probably shit down his throat and tell him how awful he is, when really he isn’t awful. He just made a really bad choice. She then asked my permission to hire on Kid2 and have him work as much as possible during our rainy season and then full time during the summer to help her out at the farm market. I of course said yes because I could see how important this was to Kid2. He had just finished telling me the other day how he is looking forward to working and how he has learned from his father and I that working can be fun and is a good thing. It shouldn’t be seen as a chore but can be very fulfilling. He was also very jealous of Kid1 when he got his first job over the summer and wished that he was allowed to work as well.

Breathing a sigh of relief, the mother and I discussed the terms of his work contract and she again said that Kid2 told her that he will probably be in a lot of trouble with me. Not so much for stealing but for lying about the events that led up to this meeting. She then repeated that Kid2 is indeed a big man for doing what he has done and hopefully I won’t be too hard on him because I have done a good job raising such a man and she is honoured to know him and have him work for her. She has never seen such a hard worker and even when his friends came by to try and drag him away from work, he continued to work at a good steady pace and didn’t allow himself to be distracted by his friends. He is a wonderful man with a wonderful work ethic who is also very smart and will go on to do great things.

I smiled and thanked her. When she left Kid2 and I talked. I told him before this happened, he was in a lot of trouble. He was going to be grounded for a very long time. I told him I was still disappointed and said, “I am not disappointed with you, I am disappointed in the choice you made.” He said, “I know mom. I tell my friends all the time that you never get upset with me but you do not always like the choices I make. That you love me and are always proud of me even when I do stupid things.” I was satisfied with this.

I felt no further punishment was needed. He was the biggest man ever and did the right thing without my having to tell him how he was going to deal with this situation and fix it. Just like Kid1, I think he will grow up to be one fine human being.

Did I say I am very proud of him?

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Because Sometimes Thank You Is Not Enough

November 14th, 2009 1 comment »

I have had a lot to deal with the past few weeks, both professionally and personally. It has been a very emotional period for me to say the least. My blog postings have been very reflective of that. Some people understand why I sometimes get overly personal and some may not. If if you are the one of the ones that may not, I think the best way I can explain this is people get scared. And those of us who live with Lupus live with a lot of fear. I want to allow people to know that it is okay and they are not alone, even at times when they feel they are alone, as I do often. Most of my feelings of being alone are self-inflicted for reasons I have explained before. I think the emotional battles one goes through living with Lupus are much harder than the physical ones. At least this has been my experience living with this disease.

And on top of those day to day battles (which get worse this time of year) I may lose the one of the major things (aside from my children) that keep me battling and going. And that is my Geeky Pleasures website and radio show. I have been so tempted the last few weeks to just write the “Goodbye it was a pleasure post, maybe we will see each other again sometime in the future” and have my site, blog, Twitter, Facebook go silent now instead of at the end of the month when it is time for the bills to get paid and there is no paying them. Then one of my friends who are on the inside of all of this will kick me in the ass and I decide to prolong it. I lose faith in myself and I begin to think none of it really matters to anyone. And even so one of the primary motivations for me doing what I do is so that I can at least pretend the elephant is not in the room and because I love it with all I am, I want to leave a legacy that was left to me by my grandma and dance teacher. As I have written before, they had chronic illness as well. Lupus took my dance teacher a couple weeks after my road to diagnosis had begun. And if it wasn’t for her, I would have never been diagnosed. My grandma was on oxygen most of my life. Both of these women did amazing things with their lives and to help others despite their challenges and obstacles. They are my heroes and I have lived my life hoping that I could pass on their message to others and give them hope, even if it is just one person. If I manage to do this, then my life meant something. Living with Lupus meant something.

And then shit happens like it has been happening over the past few weeks. Yes there have been many amazing things going on as well that cause me to stop and say, “Wow, I cannot believe this is my life!” But sometimes the shit gets so heavy it is hard to see and appreciate the good. I feel as if I have failed on what it is I hoped to accomplish. That I need to accomplish in order to keep some form of sanity and dignity. Yes my friends tell me they appreciate me and it is so appreciated and cool but that is what friends do. They love and support each other through the dark times so that they can celebrate the good together.

And then something small happens that brings me to tear. I am completely overwhelmed at the moment and cannot stop crying. I was checking my stats for my Geeky Pleasures website and I found this post that has linked to my site. Just when I am about to give up on humanity, somebody will do something small that brings me to tears and everything is fresh again. My purpose has been served and if everything ends at the end of the month, at least I know all of this was not in vain.

I want to say thank you, but sometimes thank you is not enough.

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Because Bills Just Don’t Go Away

November 12th, 2009 No comments »

*sigh* Something I have been doing a lot of lately. I am not going to enjoy writing this post and I honestly wish I didn’t have to. Friends of mine have been pushing me for weeks to write it and I keep saying no but now I really do not have a choice.

I don’t know if people realize this or not but I am self-employed which is a huge YAY. I do not have to get dressed to go to work, I have complete creative freedom over what I do, and when I am going through a Lupus flare, I do not have to worry about losing a job because of my health. Being an independent contractor has a lot of bonuses for me. Especially during seasons such as these ones where my doctor has once again decided that I need to be in reverse quarantine and am not allowed to mingle with the general population in order for me to remain somewhat healthy.

This also comes at a huge drawback. If I lose even one contract, then I am completely screwed financially. And this is what happened a month ago and with no warning. It is a temporary loss due to funding restrictions and the contract will become active again sometime in the future, I just have no idea when. This has hurt my pocket book immensely. And I do not have the luxury to find a temporary “real” job outside of the house because of the severity of my Lupus. So this leaves me in a quandary. And because I really suck at pimping myself out, self-promoting and refuse to use “connections” like many have suggested to me, this leaves me with even less options that I feel comfortable with. Even so it bites me in the ass from time to time, I am not the type of person to do things I am not comfortable with, well that is until now. *sigh*

I have been working so hard on so many different projects lately and most of them are finally starting to pay off in one way or another. I wrote last month that I may be going away again but thanks to a generous offer from a friend, I was given a months reprieve. I was hoping in that time I would finally hear back from some potential sponsors of my Geeky Pleasures site and all would be good. Despite numerous emails asking for an update, I still have not heard back from the one I am most excited about and another one said not at this time but we will keep you in mind for the near future. Well shit that doesn’t really help.

Many friends have been telling me I should put a donate through Paypal button on my site. My reaction has been “I am not comfortable with that and I would feel guilty.” They come back at me with some variation of “But Geeky Pleasures needs to stay around. It can’t disappear. It just can’t.” Even so their sentiment is appreciated, I still get taken a back every time someone messages me or emails me telling me how much they appreciate and enjoy both my website and my radio show.

So because bills just don’t go away and I have two children to feed, I have given in. I have become affiliates with a few companies. This means that my Geeky Pleasures site (which I was hoping to keep ad free) is no longer ad free. From time to time I will posting deals from said companies because in return for placing their ads on my site, I get a commission from any sales. One of these companies is Tiger Direct. Also my affiliates page will be updated as more affiliates are added. Once a week, I will be posting their weekly deals and any other promotions that they send me. The two major drawbacks to this are: I worry I may lose readers over this and I do not get paid immediately for said sales. However, if you are looking to make a purchase for say hardware or software for you computer, games or other such things, I would greatly appreciate you check out my website and go through my affiliates if you are so inclined.

My book is also available for purchase. I posted that news on my Geeky Pleasures site but did not do so here. People have been purchasing it or they tell me they plan on doing so soon. This is awesome and I so appreciate it especially since partial proceeds will be donated to the B.C. Lupus Society where the money will be earmarked for Lupus research and treatment. However, just like the affiliates, I do not get paid for those sales immediately either. There is a hold back. And when I decided to finally finish this book, I never intended to make money from it. The purpose was to raise awareness, fundraising, to get a message out and to leave something for my children. If my only reason for it was to make money, I would have gone through a publisher like I was offered. However, I refused their offer because of the reasons mentioned and self-published which may have been a mistake as people are still leery of self-published books. If you are one of those who have already bought my book or plan to soon, my deepest thanks.

And now finally, I am now accepting donations on my Geeky Pleasures site. This decision was the hardest for me to make. However after strong urging from a few individuals and the need for an immediate solution, I am very reluctantly doing so. If I do not find an immediate solution, Geeky Pleasures will be pulled at the end of the month. And I personally feel this would be a shame. The biggest reasons why I think this would be a shame is because of the platform I am able to give independent artists and musicians. Believe it or not, it has nothing to do with me. Also, it has given a platform for other contributors to get their geek on and readers a little hub for many things geek related. I have had many inquiries lately from people asking me if they could contribute on my site and I really want to be able to give them that. I find it awesome people want to take part in it and that it is starting to become a little community. Without any real promotion or advertising of that site, I have had more page views in the first 3 months than Fark had in its first year. I personally feel this to be a huge accomplishment. When Fark started a decade ago, there was little competition. However in today’s world that is not the case. My site is but one in millions upon millions and the fact it is doing so well blows my mind on a daily basis. The feedback I get on a daily basis blows my mind. Every time someone contacts me for an interview through my site instead of through the station or wanting to contribute or just tells me how much they enjoy it and are happy that I am doing what I do, I honestly get a little teary and think “Wow, I cannot believe this is my life!” I just hope coming to this decision does not have the opposite affect and that I do not alienate my wonderful readers. That would really suck. But because bills just don’t go away and I need to fix this until a better, more permanent solution presents itself, it is time for me to “swallow my pride” as one reader put it to me and just do it.

I really hope you understand and thank you for your understanding if you do.

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You Have To Hold On To These Until I Free My Shadow Lord From His Icey Prison

November 10th, 2009 No comments »

My children constantly amuse me if you have not already figured out by my stories and tweets.

Here is a brief story in the latest saga of my children.

Kid 2 just walked into my office, stuck Bionicle swords on my desk and declared, “You have to hold to these until I free my Shadow Lord from his icey prison!”

I looked at him bewildered and amused as I often do and asked, “Did you just stick your Bionicle in the big cup of water you are currently freezing?”

He smiled his mischievous smiled and responded, “Yes I did. Now lock these away in your desk so that the Shadow Lord cannot acquire them and free himself before his time.” He followed this with a mad scientist cackle.

Before I could even react, he grabbed my desk keys, locked up the swords in one of my drawers, handed me the keys and said, “You better hide these. The fate of the planet depends on it.”

Kid2 then exited stage left.

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Ignore My Ramblings

November 7th, 2009 1 comment »

Ugh. If I am telling you to ignore my ramblings then why am I posting this? Because I just need to vent and get shit out from time to time.

Last night at the end of one of my shows I almost fainted. What makes this worse is people were watching and it scared the shit out of them. I try my best to hide the daily fight I go through with my Lupus. And then stupid shit like almost fainting happens in front of people and I want to crawl into a hole. It is really difficult for me to be vulnerable and nothing is more vulnerable than people witnessing the elephant in the room trampling over you.

I feel like a tool.

My blood pressure likes to do fucked up things to my body often. Normally this passes quickly. Not this time. It has been almost 24 hours since this latest episode and I still feel weak and disorientated. I slept for close to 12 hours thinking maybe I am just overly fatigued because I have not been taking good care of myself lately and not getting at least the 9 hours of sleep that is necessary for me to stay healthy (as far as one can be healthy when they have Lupus). No dice, I still feel like crap and can barely function.

I feel like a tool.

I am such a stupid sucky baby too at the moment. I HATE this and I hate myself for not being stronger. I like to pretend that I do not need anybody. And then episodes like this happen and I long for nothing more than to have someone to cuddle with, to hold me, to stroke my hair and help out with the kids while I either sleep or just rest. It is when I am having an acute Lupus setback that I miss being in a relationship the most. It is rare that I think about relationships because more often than not I feel smothered in them. Today, I long to be smothered and babied and pampered and made to feel as if I mattered.

I feel weak and stupid and I suck. I am crying over nothing. It isn’t even taking a drop of a hat, just taking a breath and I am crying. Yes, I know I shouldn’t be so hard on myself but that is so much easier said than done. I can admit to my failings without any angst except when it comes to the psychological crap and torture I put myself through when Lupus decides it is going to attack me furiously and without warning. It is difficult to admit that I get really really scared and feel so alone. This leads to distancing myself from others and feeling even more alone. But if I show my fear and how alone I feel then others get scared as well. I do not want others to be afraid. It is not fair to them that they have to put up with this shit. Or worse, people feel sorry for me and pity me. I hate that, really HATE that.

I hope this passes quickly so I can go back to pretending I am a rock.

I am such a tool.

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Deep Thoughts Inspired By A 10 Year Old

November 3rd, 2009 No comments »

Kid2 is home sick today. Instead of doing the normal things that 10 year old boys do when home sick, such a laying on the couch all day playing video games, he is listening to ABBA karaoke on VOD.

I asked him what he is listening to. His response, “I am listening to Mama Mia because (insert name of his girlfriend here) doesn’t like it and I want to know why.”

This made me think. When do people stop taking a genuine interest in others?

I am the type of person who will explore what people like or don’t like, especially if I am in a relationship with them whether the relationship is platonic or romantic. Even if it is not something I am remotely interested in, I still explore the subject matter because I want to know what it is about that subject that causes them to dislike it or not. Now I do not know if this is a product of me caring for the person or just a bi-product of me naturally being a very curious creature or a mix of both.

However, in my experiences I have not found this to me true of most people. They find my inquiries strange and do not understand why I would care to know about these things if they do not naturally appeal to me. And they do not take an interest in things I do unless it is something they are interested in themselves.

So this little interaction between kid2 and myself will have me pondering all day when do people stop being curious,  stop caring and stop taking genuine interest in others?

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Jenny McCarthy Gets Jabbed

November 1st, 2009 5 comments »

If you have not figured it out by now, I am anti-antivaxx.

A couple friends of mine are currently at the Victoria ComicCon. There is an artist there by the name of Tyler Nicol who will turn anything horrible and make it adorable for $5. My friends, knowing how much I wanted to be at the VCC this weekend but couldn’t because of previous commitments and how much I loathe Jenny McCarthy and the antivaxx movement, had this beautiful thing made for me. Sorry for the poor quality but all I have at the moment is a camera phone picture of this awesome.

Drawing by Tyler Nicol

Do you get what it is? It is the newest myth surrounding what will happen if you get vaccinated. Unicorns will impale you. What causes me to love this even more is the likelihood of getting the various things McCarthy et al say will happen if you vaccinate is about as likely as being impaled by a unicorn. The female in this drawing is none other than Jenny McCarthy. Bloody Brilliant!

Thank you @Chibi_Tzar for this!

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A Picture Of Teenage Laziness

November 1st, 2009 1 comment »

I heard a chuckle coming out of my 14 year old so I decided to investigate. The following conversation took place.

Me: What are you watching?

Kid1: I think it’s called The Reef. It is pretty stupid.

Me: Then why are you watching it?

Kid1: Because it is on TV.

Me: There are other things on TV.

Kid1: Yeah but I don’t have my glasses on to read what else is on TV and I am too lazy to put them on and my eyes, Kid2, is not here right now to tell me what else is on. So I am watching this.

Me: Gotcha.

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